TESTIMONIALS

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Spinal Muscular Atrophy (SMA)

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The following links may be beneficial in gaining more information. If you find information which is inappropriate contained on any link on our site, please report it to us immediately. Thank you!

A little-known, but deadly degenerative disease that affects mainly young children and is a genetically determined disease, which affects some 10,000 kids in the United States, damaging the neurons responsible for relaying messages to muscle cells. Without proper stimulation, the muscles atrophy, often leading to paralysis and respiratory failure. A non-profit organization, Andrew's Buddies, raises funds for research and awareness. Children with SMA type I (most severe form) almost always die before their second birthday. For more information, click on web-site:

Fight SMA site: http://www.fightsma.com (National organization dedicated to cure for SMA)

Our SMA Angels http://www.our-sma-angels.com (Special Tribute to children who have suffered from SMA)

Families of SMA http://www.fsma.org (Non-profit organization, to provide support, raise funds for research and provide information)

San Antonio Chapter of SMA: contact Victor Castano, President at 210-684-1848 or fax 210-650-9044

Muscular Dystrophy Association of Canada http://www.mdac.ca (Volunteer agency)

MDA-USA http://www.mdausa.org (Excellent source for news, information, research and resources for both children and adults with MDA or neuromuscular diseases)

Jennifer Trust for Spinal Muscular Atrophy http://www.jtsma.org.uk/index.html The Jennifer Trust was founded as a support group for families and individuals with SMA. Worldwide group.